Saturday, June 18, 2011
Monday, April 4, 2011
After the "snickers" episode I was dreading the day when I would need assistance with my monthly gift. Everybody poops, but not everyone has a period. I was quickly approaching the point of no return, the point when my dear caregiver Jason would have to go where no man had gone before. To my suprise he was pretty okay about it, although I was mortified while he assisted me in cleaning and padding my bit-bits. He became quite proud of his first hand knowledge of various feminine hygiene products and how they operated all the way from wings to types of applicators. After about six weeks, of really only needing minor assistance with feminine endeavours,the ALS fully conquered the function of my arms and hands. When an area of my body is no longer receiving nerve signals from my brain, the paralysis is easy to deal with. The difficulty of the disease is the weakening of my muscles. Simple tasks like brushing my teeth takes longer and becomes exhausting while my once one ounce oral-b toothbrush begins to weigh five pounds.
Saturday, April 2, 2011
Saturday, March 26, 2011
Thursday, February 10, 2011
Thursday, September 2, 2010
The second time I got pneumonia it was way better. It was a tuesday, I was feeling lousy and my lungs were thick with sludge making difficult to breathe. By about four in the afternoon I felt something was seriously wrong. At that that time Jason came at me with our trusty thermometer, shoved it into my mouth, and he confirmed what I already knew. "100.3 congrats you're at triple digits," he exlaimed. Shit pneumonia, did I really want to go through this again? Last time I wanted to die. I took a shot of morphine and talked it over with my mom. "You can try kicking it with oral antibiotics or go to the emergency room," she said while pushing a dose of levequin and Lord knows what else, down my feeding tube. I knew if I didn't get IV antibiotics I would be in a world of hurt and eventually have to go to the hospital, if not to get better then to be taken off my breathing box and die. This time however, I knew what to expect and I would be prepared. Jason dressed me in my always looking sexy hospital gown, slapped on a fresh pair of sexy panties, and wheeled me out to the front door ready for the steamy Fairfield fire department. I was looking like one hot tamale.
When I arrived at the emergency room, to my surprise, the staff remembered me! Of course why wouldn't they, I simply have an unforgettable face. I didn't recognize any of them. Maybe because last time I was happy on valium and in my mind I was tanning on a warm beach in Hawaii. I was placed in a fridged ER room built for two, separated only by a pale blue curtain with no auditory privacy. Nurses waltzed in attatching EKG wires and recording vital signs, while the respiratory therapist was fine tuning the hospital's ventilator he switched to. They were all like a buzzing swarm of insects taking turns landing on my pile of giant poop. Immediately the impossible search began... the search for a vein. Most of you may already know that your muscles push your veins against your skin, that is why juiced up athletes have such huge veins and tiny testi... ummm... hands. When you have the ALS, like myself, your veins titanically sink into your arms. One nurse compared it to looking down onto a miniature freeway trying to stop a car with your finger and the entire time your blindfolded. So when the buzzing nurses began hunting my limbs for a good blood gusher, none popped out leaving them no option but to dig with a needle hoping to stab a vein. Oooouch! Why didn't I feel this much torturous pain during the last round of pneumonia? Oh yeah, drugs and Hawaii. More morphine please! After poking my arms and feet for well over thirty minutes the doctor came in and took a look around my piche area. "We could try your groin," he stated like it was not a big deal. My evelids separated wide and my eyeballs grew white as I mouthed out, "No way!" while in the back of my mind I knew what procedure was coming next.
A second doctor strolled in with an ultrasound sound machine and a needle, guess what he was going for... my jugular, IN MY NECK! "Lay still," he instructs, I internally giggle. Pfft, as if I could move. And after he had his turn digging around searching for the damn vein, he had no success. I felt like a human pin cushion. Then the big guns were called in. In walks this sinister looking man carrying a huge case, which I knew was full torture devices, and wearing a shirt saying something along the lines of "infusion victory" translated he would get that IV in! I was hopeful and after poking a few nerves that were inconveniently in the way, he came out victorious. Mr. Victory inserted a PIC line which is a tube going from my non-existent bicep to the top of my heart, through my vein or artery, I don't know which one. I had one put in during the last round of pneumonia, but again I don't I remember I was in Hawaii. Finally, no more needles and in poured the antibiotics.
Then came the fight.